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Post by Damien Tonkin on Oct 20, 2005 1:27:40 GMT 8
I'm in almost exactly the same position, which is why I haven't updated recently but when I get the time and the energy I'm gonna go to the state library and see if I can get copies of any news articles involving cfs chrysalis or members thereof, hopefully that'll give us a shot in the arm so to speak. I'm also going to put in a "getting to know you" forum so that hopefully we can all start talking about things outside just cfs. I'll also add a welcome message explaining who we are and what we're about, which I've been meaning to put in since the beginning but so far has proved something of a stumbling block so if anyone has any suggestions please let me know. By the way I never said this board was only for people in WA (technically this is hosted in California anyway) everyone's welcome. just don't sexually harass anyone or try to sell us drugs
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Welcome
Oct 25, 2005 14:27:37 GMT 8
Post by Linda Wylie on Oct 25, 2005 14:27:37 GMT 8
:)Hi everyone at Chrysalis. This is Gary's Mum Linda. Gary has suffered from CFS for the last 10 years and is well known to the original Chrysalis members. When he first became ill I had no idae about CFS and could not find any information on how to cope with a child suffering from this very debitiltating illness. I have just finished writing a book about our experience, how we coped ,what helped and what did not and also about how important it is for parents to believe their children when CFS first strikes. My book should be in print some time in NOvember 2005. If anyone is interested in getting in touch to find out more or just to chat to me as a parent of a son with CFS you can email me at: linda.wylie@bigpon.com
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Welcome
Oct 25, 2005 14:35:39 GMT 8
Post by linda wylie on Oct 25, 2005 14:35:39 GMT 8
:)Hi Claire, We have not been in touch for ages. Glad to be able to catch up on this site. You will have seen on here that I have written a book about caring for a youth with CFS. You ofcourse being our saviour appear in it ,if you could contact me by email or phone I will send you a copy and would very much appreciate you opinion. I also hope it will be ok with you for your name to appear in my book. Only good things to say about you and all you have done for sufferers of CFS
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Welcome
Oct 26, 2005 10:13:27 GMT 8
Post by bambi on Oct 26, 2005 10:13:27 GMT 8
Hi. I'm Kristina, I'm 21 and I have had ME/CFS for nearly two years now. I'm pretty much house bound at the moment and I have to carefully manage my reserves. I am hoping to find some other people who I can chat to.
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Welcome
Nov 18, 2005 20:40:19 GMT 8
Post by linda on Nov 18, 2005 20:40:19 GMT 8
Hi everyone, I am Linda Wylie , Gary's mum. Gary had C.F.S. for ten years but has improved to the point that he is now studying at TAFE. I also was diagnosed with C.F.S. about three years ago. If anyone, parents or carers of young people with C.F.S. would like to contact me they can do so through my email: linda.wylie@bigpond.com. I will place details and extracts of my book, " Chronic Fatigue Syndrome is a Real Pain..." which should be in print by Dec 1st, on this sight very soon.
A special hello to Ben and Kylie. Hope you are both coping well at the moment. It would be great to hear from you if you ever have the time and the energy. Gary is so busy at the moment and is hanging out for the Christmas break.
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Welcome
Nov 19, 2005 15:31:49 GMT 8
Post by Damien Tonkin on Nov 19, 2005 15:31:49 GMT 8
I'd like to apologise to Kristina aka bambi for not having written back I guess i kind spaced out there
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Welcome
Nov 19, 2005 16:50:53 GMT 8
Post by Damien Tonkin on Nov 19, 2005 16:50:53 GMT 8
By the way the ads on the top of the site automatically adjust themselves to what we're talking about, I wouldn't care except that a moment ago they started saying we can cure cfs I strongly suggest you ignore them.
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Welcome
Jan 12, 2006 16:09:52 GMT 8
Post by Damien Tonkin on Jan 12, 2006 16:09:52 GMT 8
things have been a bit slow lately but hopefully I'll have more time to work on the website now that the new year has started also linda's book has been published so I hope she has success with it.
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Post by changerly on Apr 2, 2006 18:41:20 GMT 8
hi i'm a 26 year old guy and have been suffering from cfs for 6 years now, and wanting to start socialising again, just starting to have enough energy to do it, and thought meeting at support groups and talking online would be good. anyone in north east vic area and wanting a e-pal?
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john
Newbie
Posts: 2
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Welcome
Jul 25, 2006 23:09:34 GMT 8
Post by john on Jul 25, 2006 23:09:34 GMT 8
Hey my name is John, its cool i didn't even know that there was a message board for ppl in wa with cfs/me. Good on ya mate! I have had cfs for 4 yrs now and its great to find other young ppl to talk to about it and life that understand you. o yeah, i live in wa, anyways i hope to chat to some ppl in the future if this board is still in operation that is. John
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Post by Damien Tonkin on Aug 4, 2006 17:37:14 GMT 8
Yes we are most definitely still around the problem is that my health has taken a turn for the worse since the beginning of the year and as a result interest has waned somewhat. My goal now is to get people to use this site discuss things among themselves rather than constantly referring things to me this would make the boards more or less self sustaining. also it's good to have someone else from WA, while I have nothing against members from interstate it does make it somewhat difficult to meet physically. on an unrelated note I went to Gary's birthday party last month (Gary from the old chrysalis) his healthy friends kept asking me where I knew him from and I wasn't sure what to say, after all people can be a bit funny about cfs, then I remembered that his mother has written a book about his life so if he did want to keep it quiet it was probably a little late.
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jess
Newbie
Posts: 2
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Welcome
May 15, 2008 21:01:42 GMT 8
Post by jess on May 15, 2008 21:01:42 GMT 8
hi, im new to this forum, yet all the posts seem to be years old. is this site still active
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